Rare Disease Advocacy in Disctrict of Columbia
Rare disease advocacy in District of Columbia is critical to improving access to diagnostics, treatment, and coordinated care. Because key healthcare decisions are made at the state level, strong local advocacy helps ensure better coverage, resources, and outcomes for the rare disease community across Columbia.
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State Organization
Currently this state does not have a state organization.
U.S. Congress Scorecard
See how Columbia’s Members of Congress are supporting the rare disease community with this Legislative Scorecard.
RARE Disease Advisory Council
An Advisory Council has not been established yet.
See more information on established rare disease advisory councils.
Rare Disease Caucus
Current Bipartisan Rare Disease State Legislative Caucuses.
Don’t see your state? If you would like to be part of the process to start a rare disease state caucus, please reach out at advocacy@rareadvocates.org.
District of Columbia Advocacy Resources
Insurance Commissioner
- Karima M. Woods
https://disb.dc.gov/biography/about-commissioner
State Medicaid
- Medicaid in District of Columbia
- Contact: Melisa Byrd
melisa.byrd@dc.gov
Department of State Health Services
