Statement from EveryLife Foundation for Rare Diseases House Energy & Commerce Committee Markup September 18, 2024 Share this page On behalf of the EveryLife Foundation for Rare Diseases, we thank you for convening this markup to advance bipartisan legislation that will help to support the needs of people and families impacted by rare diseases and disorders. Legislative Proposals Orphan Drug Incentives Related Articles EveryLife Foundation for Rare Diseases is now the RARE Foundation September 08, 2026 The EveryLife Foundation Submits Comments to Support Patient-Focused Drug Development and Medical Innovation July 01, 2026 FDA Rare Disease Roundtable – June 3, 2026 June 04, 2026 See All News