This resource offers a deeper look at the federal appropriations process, including how funding priorities are established and negotiated in Congress. It highlights ways advocates can help shape funding decisions that impact rare disease research, programs, and services.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
