RARE Foundation’s priorities for the reauthorization of PDUFA VIII as of May 2026. Priorities reflect the engagement of the Ad-Hoc PDUFA Working Group in 2025 and 2026.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
