Learn about Rare Disease Advisory Councils and how they bring together patients, caregivers, clinicians, and policymakers to address rare disease challenges at the state level. This session explores how advocates can support or participate in these important advisory bodies.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
