This resource helps individuals share their experiences with prescription access barriers, including insurance denials, delays, or affordability challenges. Patient stories collected through this effort help inform advocacy initiatives aimed at improving access to treatments for the rare disease community.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
