This policy primer provides an overview of Medicaid and its critical role in supporting individuals with rare diseases, including access to specialized treatments, home and community-based services, and long-term care. It also explains key Medicaid policies, waiver programs, and recent changes under H.R.1, highlighting how these reforms may impact coverage, eligibility, and services for rare disease patients and their families.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
