A one-page resource outlining key principles and policy considerations for protecting Medicaid access for people living with rare diseases. The document highlights the importance of maintaining comprehensive coverage, continuity of care, and access to medically necessary treatments as states implement healthcare policy changes.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
