This webinar provides an overview of H.R.1 and explores how the legislation could impact the rare disease community, including potential implications for healthcare coverage, access to treatments, and patient support programs. Viewers will gain insight into current policy discussions and advocacy priorities.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
