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1012 14th Street NW, Suite 500
Washington, DC 20005
Phone 202-697-RARE (7273)

© 2026 RARE Foundation

EveryLife Foundation for Rare Diseases is now RARE Foundation

New Name, Same Commitment to Rare Diseases

The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.

RARE Young Advocates