Advocacy and Policy Resources

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Advocacy

Telehealth and the Rare Disease Community
State Engagement

California Letter Regarding Telehealth for Rare or Terminal Conditions – April 20, 2026
State Engagement

South Carolina Letter Regarding Cost Sharing March 30, 2026
State Engagement

Rhode Island Letter Supporting SB 2253 – March 24, 2026
State Engagement

Letter in Support of Alaska Joining the Interstate Medical Licensure Compact – March 17, 2026
State Engagement

Missouri Letter Supporting Access to Affordable, Life-Sustaining Medical Care – February 5, 2026
State Engagement

Massachusetts Letter in Support of the Interstate Medical Licensure Compact – September 15, 2023
State Engagement

North Carolina Letter Supporting Interstate Medical Licensure Compact – July 26, 2023
State Engagement

Hawaii Testimony on the Interstate Medical Licensure Compact – February 10, 2023
State Engagement

Virginia Testimony on the Interstate Medical Licensure Compact and Commission – January 26, 2022