Watch this Rare Disease Congressional Caucus briefing exploring the importance of accelerated approval and its impact on innovation, patient access, and therapy development for the rare disease community. The discussion features patient advocates, experts, and policymakers sharing perspectives on the future of rare disease treatments.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
