Rare Disease Congressional Caucus Briefings

Briefings This Year

• July 22, 2026 – Improving Access to Care, Treatment, and Community Support – Watch Recording

• February 27, 2026 – Rare Disease: The Time is Now – Watch Recording

Archive of Past Briefings

What is a Congressional Caucus?

A congressional caucus is a group of members of the United States Congress that meets to pursue common legislative objectives. Formally, caucuses are formed as congressional member organizations (CMOs) through the United States House of Representatives and governed under the rules of that chamber. There are hundreds of caucuses. The most common caucuses consist of members united as an interest group. A caucus can hold briefings to raise awareness on an issue. However, briefings are not actionable, ie: no bills can be introduced or voted on. A caucus may join members together in a voting block to support or oppose legislation, however most interest group caucuses are used to gain media attention and raise public awareness. Congressional caucuses must be re-filed in the House at the start of each new Congress. The filing papers must be submitted to the House Committee on Administration.

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Ask Your Members of Congress to Join the Rare Disease Congressional Caucus

Urge your representatives to join the caucus and stand up for people with rare diseases.

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Thank you to our 2026 Caucus Briefings Sponsors

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