RARE Young Adults Speaker Bureau Writing

Carter Hemion

• Graceful Strength: Living Resiliently with Ehlers-Danlos Syndrome (Featured)
• MLT resident works to raise awareness about a group of connective tissue disorders (Featured)
• Rare disease patients need the STAT Act to pass
• Letter to My Younger Self
• Finding Myself in My Rare and Queer Identities

Kendall Rump

• Patient, Heal Thyself: My Research Internship with ACMCRN
• Women in RARE: Next Gen (Featured)

Jessie Birnbaum 

• Catastrophe and Confusion: My Journey as a Medical Mystery
• Living RARE

Jordan Howard

• The Importance of Newborn Screening
• From Camp to Capitol Hill, Jordan Howard Advocates for Hemophilia (Featured)

Kathryn Cowie

• Why academia drives out young, chronically ill students
• Embracing Contradictions: My Diagnosis Journey

Camryn Berry

• PhD Student Researching Rare Bone Disorder She Was Diagnosed with as a Child
• Alumna Spotlight: Camryn Berry ‘21 – Turning Personal Adversity into Scientific Advocacy

Gabbi Lewis

• Beauty in Being Rare