RARE Young Adults Speaker Bureau Presentations

Check out these presentations from RARE Young Adults speakers.

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FDA Rare Disease Day 2026: Young Patient Advocates for Rare Disease featuring Carter Hemion and Liam McCarthy

SPES 2024 Session 2: Future GOATs: Engaging with the Adolescent Community featuring Elsa Kendall

Meet advocate, activist, and hemophilic patient, Tai

Tai, a mixed-race nonbinary person, does a peaceful yoga pose

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July State Advocacy Webinar: State-Level Success Stories featuring Amelia Hartley and Anneliese Williams

Justice Rickenbach PWSA, USA EL PFDD

Justice Rickenbach at the PWSA, USA 2023 National Convention 

My Backpack Keeps Me Alive, BORN DIFFERENT, featuring Kelly Baker

ICAN Presents – Ask the Experts: “Advocacy Through Writing” Hosted by Dr. Anthony Chang, featuring Nell Choi, Carter Hemion, and Nicole Mendez-Villarrubia

2022 iCAN Summit presented featuring Amelia Hartley

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