About this Artist
Name
Solana Acuna
Birth Year
2013
State
Texas
Rare Disease Affiliation
Severe Combined Immunodeficiency (SCID)
Hi, I’m Solana. I’m 11. I was born with a severe immune deficiency. My Mom sometimes talks about “the bubble boy” when she explains it. I have to be careful because sometimes my immune system gets so low that I have to go into the hospital.
My sister’s name is Solice. She has seizures, and Mom calls her our “forever baby”. She looks like she is 3, but she is 8. She inspires me because she is made differently, like me.
Most people can talk, walk, feed themself, clothe themself, but my sister can’t. Mom does it for her. I like to help Mom take care of her by making sure her teeth are brushed, helping get her dressed and feeding her, and grabbing her seizure medicine when she needs it.
In return, I get a little sister that is full of joy. She makes me smile when I’m having a bad day, and I know she loves me so much.
She is so inspiring with how she moves through life.
My art always tells a story. When I draw or paint and she’s near I like to sketch how I think she feels. Her and my art are very connected.
