Trova O’Heffernan
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The mother of a child with Amniotic Band Syndrome, Trova O’Heffernan is deeply committed to improving health outcomes for the rare disease community. As Chief Operating Officer, she brings 25 years of experience spanning the private, government, and nonprofit sectors. Her leadership has been instrumental in securing a 30% budget increase and guiding organizations through major transitions, including a change in public‑sector administration, two agency‑wide reorganizations, the COVID‑19 pandemic, public crises surrounding historically close contested elections, and the revitalization of mission‑critical nonprofit programming. An active Board member in her community, Trova is passionate about unifying people and organizations for the public good.
