Member since April 2023
Rare Disease Connection
Amyotrophic Lateral Sclerosis (ALS)
Education
Currently in High School
Affiliations
NORD Students for Rare
Fun Fact
I have a wonderful dog named Lyra and play viola in my spare time!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
