Ronan Strempek
Member since September 2026
Rare Disease Connection
Huntington’s Disease
Education
Currently in High School
Affiliations
None yet!
Fun Fact
Our dog, Teddy, is another rare: a long-haired Labrador Retriever!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
