Riley Styers
Member since March 2026
Rare Disease Connection
Marfan Syndrome
Education
Currently in College
Affiliations
Marfan Foundation
Fun Fact
I love playing guitar!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
