Member since June 2026
Rare Disease Connection
VACTERL Syndrome
Education
Currently in High School
Affiliations
- NORD
- Pull-Thru Network
Fun Fact
I love music, whether it be creating it or listening to it. I especially love hip-hop, jazz, and funk.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
