Nicholas Lenfestey

Member since November 2021

Rare Disease Connection

• Childhood cancer
• Noonan Syndrome
• Scleroderma 

Education

Currently in High School 

Affiliations

• St. Baldrick’s Foundation
• Ronald McDonald House 

Fun Fact

I am passionate about advocacy and the opportunity to amplify the voice and needs of the rare disease community. I also enjoy playing and watching sports and traveling.