Mike Lane is a patient advocate and passionate voice in the Amyloidosis rare disease community. With decades of involvement in children’s cancer organizations, Mike brings commitment and experience to rare disease advocacy. Since his T60A Amyloidosis diagnosis in 2018, he has become a fierce champion for Amyloidosis awareness, founding the Amyloidosis Army to bring awareness to the underserved communities. Mike also serves on the Patient Advisory Committee for the Amyloidosis Research Consortium. A published author on amyloidosis, Mike focuses his advocacy on the underserved and underrepresented communities, ensuring awareness reaches the grassroots level where Amyloidosis goes disproportionately undiagnosed. His relentless dedication to improving awareness and diagnoses will continue to drive change for the rare disease community.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
