Lily Kahrl
Member since March 2025
Rare Disease Connection
STXBP1
Education
High School Certificate of Participation
Affiliations
STXBP1 Foundation
Fun Fact
I have ridden a camel and swum with dolphins!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
