Member since February 2026
Rare Disease Connection
Ehlers-Danlos Syndrome
Education
B.S. in Biomedical Sciences
Affiliations
None yet!
Fun Fact
I have been renovating/restoring a 1958 MCM house for the past year and a half!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
