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Member since December 2024

Rare Disease Connection

  • Ehlers-Danlos Syndrome (type 3)
  • Mast Cell Activation Syndrome
  • Exocrine Pancreatic Insufficiency 

Education

Bachelor’s Degree in Behavior Sciences and Autism Spectrum Disorders 

Affiliations

  • Our Odyssey
  • PCORI 

Fun Fact

I’m a patient advocate with a strong passion for honoring patient voices and lived experiences.