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Member since March 2021

YARR Leadership Academy Class of 2021

Capstone Topic: Department of Defense Congressionally Directed Medical Research Program (DOD CDMRP)

Rare Disease Connection

  • Ehlers-Danlos Syndrome
  • Intracranial Hypertension
  • Complex Regional Pain Syndrome (CRPS)
  • Trigeminal Neuralgia
  • Alopecia Areata Incognita

Education

Studying Neuroscience, Aspiring MD/PhD student

Affiliations

  • Ehlers-Danlos Society
  • Recurrent Respiratory Papillomatosis Foundation
  • Rare-X
  • Mirum Pharmaceuticals

Fun Fact

I was invited to the first White House Rare Disease Forum in 2024. I’m also a singer and had the chance to tour throughout iconic European cathedrals with my university!

Publications

Toward Improving Physician/Patient Communication Regarding Invisible Chronic Illness (ICI): The Potential of mHealth Technology in Instructional Communication

Women in RARE: Next Gen: Kendall Rump

Patient, Heal Thyself: My Research Internship with ACMCRN

Learning Anatomy Through Art