Katie Haynes
Since November 2024
Rare Disease Connection
17q12 Deletion Syndrome
Education
Associate’s Degree in Photography
Affiliations
CEO/Founder of Smiling While Sending Hope
Fun Fact
I love adaptive hunting!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
