Skip to content

Member since October 2022

Rare Disease Connection

  • Goldenhar Syndrome
  • MEN Syndrome
  • Inappropriate Sinus Tachycardia 

Education

Bachelor’s Degree in Human Biology and in Psychology 

Affiliations

  • Global Genes
  • CDC 

Fun Fact

I am passionate about rare disease advocacy, mental health reform, and my German Shepherd Delilah!