Isabella Park
Member since January 2025
Rare Disease Connection
Congenital Radioulnar Synostosis
Education
Currently in college
Affiliations
Co-founder of RUS in Focus
Fun Fact
I enjoy dancing in my free time and drawing on my iPad!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
