Grace Barnhart
Member since June 2024
Rare Disease Connection
Marfan Syndrome
Education
Current college student
Affiliations
The Marfan Foundation
Fun Fact
I am a huge ice hockey fan, and my dream is to become a military social worker!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
