An experienced advocate for people living with rare diseases, Gina served as a State and Federal legislative staffer for Frank Pallone, Jr. before joining Cooley’s Anemia Foundation as National Executive Director where she drove initiatives to raise disease awareness, drive science and expand partnerships with stakeholders for more than 15 years. Gina then moved to industry as Head of Patient Advocacy and Communications for ApoPharma, and now serves as US Public Affairs Lead for Global Rare Diseases at Chiesi Group. She holds a bachelor’s degree in the Great Books from Saint Mary’s College of California and a J.D. from The Catholic University of America, Columbus School of Law and is a retired member of the New Jersey Bar.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
