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Evren Ayik

Member since May 2020

Rare Young Adults Leadership Academy Class of 2021

Capstone Topic: Board of Directors Member for a rare disease patient organization

Rare Disease Connection

Acid Sphingomyelinase Deficiency (ASMD)

Education

Fresno State University

Affiliations

  • Eagle Scout
  • TORCH Award Winner
  • Co-author of Extraordinary! A Book for Children with Rare Diseases

Fun Fact

I enjoy having adventures, watching Denver Broncos games (especially in person), and spending time with my family and friends. I advocate because I want to live a great story and help other do the same.