Evie Vancisin

Member since October 2024

Rare Disease Connection

Qualitative Platelet Function Disorder
Hypermobile Ehlers-Danlos Syndrome
Familial Hyperaldosteronism
Behçet’s-like Syndrome/RIPK1 Deficiency

Education

High school student taking CCP classes at Kent State

Affiliations

State Independent Living Council Youth Advisory Committee member

Fun Fact

I love to crochet, and I’ve handmade my Halloween costume for the past 3 years. I also enjoy gluten-free baking!