Brigid Brennan brings over 30 years of legal training and passion for advocacy to the Friedreich’s Ataxia Research Alliance where she serves as Board Director, General Counsel, and Director of Advocacy. Brigid joined FARA when her son was diagnosed with FA in 2014. Since then, she has partnered with numerous stakeholders to advocate for policy changes and increased funding to expedite rare disease research. She is a member of the bar in New York & New Jersey and currently holds an elected position in Larchmont, NY as Village Trustee.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
