Member since September 2026
Rare Disease Connection
Limb-Girdle Muscular Dystrophy Type 2C/R5
Education
Currently in college
Affiliations
- The SPEAK Foundation
- Muscular Dystrophy Association (MDA)
Fun Fact
I can wiggle my right ear!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
