Avery DeSantis
Member since May 2026
Rare Disease Connection
SAPHO Syndrome
Education
Pursuing a Master of Science in Physician Associate Studies
Affiliations
None yet!
Fun Fact
I was part of a community circus for many years!
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
