Amy Aikins
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Drawing on her personal journey as a mother to an adult living with Duchenne muscular dystrophy, Amy Aikins has built a career advancing the interests of individuals with rare diseases and disabilities. Her extensive experience in both government and private non-profit organizations has equipped her with deep knowledge in program management, patient advocacy, health insurance, and public benefits. Through meaningful engagement with stakeholders and active participation in collaborative initiatives, she works to ensure that patient perspectives are integrated into coverage policy development and implementation. Her leadership and advocacy have contributed to improvements in treatment, access, and quality of care.
