Amanda Van Eps is a Vermont-based designer, advocate, and creative strategist whose work centers on the intersection of perception, policy, and lived experience in rare and complex conditions. As a member of the Vermont Commission on Women and the Board of Directors for Disability Rights Vermont, she brings a systems-level lens to equity, access, and community-driven reform.
Amanda is the founder and Creative Director of Haus of Van Eps, a design-led social enterprise that uses storytelling, inclusive design, and visual advocacy to illuminate gaps in health, disability, and gender equity systems. Her projects, including the Rare Perception Project and Ball & Chain campaign, translate policy barriers into public-facing narratives that drive awareness, empathy, and action.
Committed to elevating underrepresented voices, Amanda advances cross-sector collaboration between advocates, clinicians, and policymakers. She is honored to join the RDLA Advisory Committee and contribute to strengthening national rare disease advocacy efforts.
