Skip to content

Addyson Carpenter

Member since December 2025

Rare Disease Connection

  • Primary Adrenal Insufficiency
  • MEF2C Related Neurodevelopmental Disorder
  • Gould Syndrome 

Education

Not currently in school 

Affiliations

  • Chair of the Minnesota Council on Disability
  • MEF2C Family Foundation
  • Oley Foundation 

Fun Fact

I am the mom to a 17-year-old!