Today, the EveryLife Foundation’s Director of Policy Dylan Simon and the co-chair of the Community Congress Diagnostics Working Group and President of Project Alive Dr. Kim Stephens testified during the Advisory Committee for Heritable Disorders in Newborns and Children meeting.
The Advisory Committee for Heritable Disorders in Newborns and Children (ACHDNC) is the federal advisory committee that make recommendations for the Recommended Uniform Screening Panel (RUSP) and overall improvements that could be made to the newborn screening system.
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