Through its programs such as RareGiving and #RAREis Scholarship Fund, the EveryLife Foundation supports individual rare disease patients and organizations that engage patients, caregivers, and others in the community in public policy. In 2021, the Foundation provided a total of $784,000 in direct support — $200,000 more than the year prior — through donations, stipends, financial awards and scholarships.
For more information regarding medical support, nonprofit grants, scholarships, and travel assistance please visit the EveryLife’s financial support page.
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- The EveryLife Foundation submitted a statement to Congress urging lawmakers to support the inclusion of funding for the Rare Disease Innovation Hub
