Rare Disease Legislative Advocates have officially opened registration for Virtual Rare Disease Week on Capitol Hill. This event will be held February 22nd – through March 2nd and will include the same opportunities as in-person Rare Disease Week, plus more!
Rare Disease Week on Capitol Hill brings together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.
To check out the full schedule of events and to register please visit rareadvocates.org/rdw
If you have any questions or need more information please reach out to RDLA staff Katelyn Laws at klaws@rareadvocates.org
