Rare Disease Legislative Advocates have officially opened registration for Virtual Rare Disease Week on Capitol Hill. This unique event will be held July 14th through July 22nd and will include the same opportunities as in-person Rare Disease Week, plus more!
This year’s event will mark the 10th anniversary of Rare Disease Week on Capitol Hill, which brings together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.
To check out the full schedule of events and to register please visit rarediseaseweek.org
If you have any questions or need more information please reach out to RDLA staff Katelyn Laws at klaws@rareadvocates.org
