Are you ready to take your advocacy journey to the next level? If so, the Rare Disease Legislative Advocates (RDLA) invites you to apply for the new Rare Advocacy Learning program. The free, six-week program is designed to provide in-depth education and advocacy training, developing a pathway toward year-round advocacy engagement.
The first program will be offered May 9th through June 24th and is entitled “Making an Impact on State and Local Policy.” During the series of six seminars, advocates will learn about rare disease state policy issues that affect the rare disease community and opportunities to engage with key stakeholders on the local level.
Weekly seminars will be two hours in length and offered in a mix of live and recorded formats. Participants who complete all six seminars and a final project will be awarded a certificate of completion.
“The inspiration for Rare Advocacy Learning was conceived from conversations with advocates and from responses we received to the 2021 RDLA Advocate Survey,” said Shannon von Felden, EveryLife Foundation for Rare Diseases Senior Director of Advocacy. “We are grateful to the community for sharing their ideas and allowing us to walk alongside them in their advocacy journey. We are honored to be their advocacy partners.”
Rare Advocacy Learning and all RDLA events and resources are offered free of charge to patient advocates. Advocates with prior advocacy experience are encouraged to apply. Experience may include participation in advocacy events, meetings with policymakers, or other activities designed to advance policies impacting the rare disease community. The deadline to apply is April 1, 2022.
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