On behalf of the more than 30 million Americans living with one of the over 10,000 known rare diseases, the National Organization for Rare Disorders (NORD) and the EveryLife Foundation
for Rare Diseases thanks the Senate Finance Committee for holding a hearing entitled “Lower Health Care Costs for Americans: Understanding the Benefits of the Inflation Reduction Act.”
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
