News Newborn Screening Coalition Letter May 05, 2025 Share this page 272 organizations committed to the health of our nation’s mothers, infants, children, and families, express their deep concern over the Administration’s recent decision to eliminate the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC). Newborn Screening Related Articles HHS Adds Duchenne Muscular Dystrophy and MLD to the Federal Recommended Uniform Screening Panel (RUSP) December 16, 2025 What’s Next in 2025? Rare Disease Policy Opportunities in Congress July 29, 2025 EveryLife Foundation Leads 273 Organizations in Letter Urging Protection and Restoration of Federal Newborn Screening System May 05, 2025 See All News