More than 600 advocates came together virtually for Rare Disease Week on Capitol Hill 2021! The impact made during this week is the culmination of the rare disease community’s dedicated work year-round and will help rare disease patients for generations to come.
This year marked the 10th anniversary of this empowering and inspiring week of action, and we have already begun planning for next year’s event. In-person Rare Disease Week on Capitol Hill 2022 will take place February 28th through March 2nd.
View Rare Disease Week Videos and Wrap up
