Today, SF 2345 passed the Iowa House and Senate unanimously. This newborn screening legislation implements a two-and-a-half-year timeline in which screening must begin for new conditions added to the federal Recommended Uniform Screening Panel (RUSP).
“As new treatments and new diagnostic tests are developed each year, an increasing number of disease communities will be able to utilize newborn screening to deliver life-saving diagnosis early in life. RUSP alignment legislation ensures that Iowa will keep up with those developments,” said EveryLife Foundation Chief of Policy, Advocacy, and Patient Engagement, Annie Kennedy. “We are grateful for the Iowa State Legislature passing this impactful legislation that will ensure Iowa remains a leading state for newborn screening.”
Thank you to Iowa Representative Ann Meyer and Senator Jeff Edler for their leadership of this key legislation that will help save the lives of more than 100 Iowa babies annually.
Thank you to the more than 60 patient advocacy organizations who signed our letter of support for the legislation and to all those who weighed in with their legislators to ensure they knew the importance of timely implementation of newborn screening conditions.
