On June 3rd, The EveryLife Foundation submitted comments in response to CMS’ Request for Information (RFI) related to Coordinating Care from Out-of-State Providers for Medicaid Eligible Children with Medically Complex Conditions. The issue of out-of-state care is of high importance to EveryLife and the rare disease community more broadly and has been highlighted as a priority policy area by the Community Congress Access Working Group.
About the EveryLife Foundation for Rare Diseases
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to advancing the development of treatment and diagnostic opportunities for rare disease patients through science-driven public policy. The Foundation does not speak for patients, but instead provides the training, education, resources and opportunities to make patient voices heard. By activating the patient advocate, the Foundation believes it can change public policy and save lives.
